THE NATIONAL FRAGILE X FOUNDATION
P.O. Box 190488
San Francisco, CA 94119-0488
Robert Miller, Executive Director
e-mail: natlfx@FragileX.org
Toll Free: 800-688-8765
Fax: 925-938-9315
Internet Home Page: http://www.fragilex.org
Provides information and resource centers about Fragile X, organizes International Conference, large library of literature and videos about Fragile X
FRAXA RESEARCH FOUNDATION
45 Pleasant Street
Newburyport, MA 01950
Katherine Clapp, President
Phone: 978-462-1866
Fax: 978-463-9985
e-mail: info@fraxa.org
Internet Home Page: http://www.fraxa.org
Parent run organization that funds research on Fragile X Syndrome. Their Internet site offers links to other information, including the Listserv on Fragile X
FRAGILE X TREATMENT & RESEARCH CLINIC
The Children's Hospital
1056 East 19th Avenue
Denver, CO 80218
303-837-2598
CHILD DEVELOPMENT UNIT
Duke University Medical Center
Box 3364
Durham, NC 27710
Gail Spiridigliozzi, PhD Tel: 919-684-5513
THE ARC
http://TheArc.org/welcome.html
A voluntary organization committed to the welfare of all children and adults with mental retardation and their families.
CLOSING THE GAP
http://www.closingthegap.com
Closing the Gap, Inc. is an organization that focuses on computer technology for people with special needs through it's bimonthly newspaper, annual international conference and extensive website. Search the annual resource directory online.
Helpful national Internet sites:
U.S. HOUSE OF REPRESENTATIVES
http://www.house.gov
1997 IDEA Amedments - full text of the bill amending the Individuals with Disabilities Education Act:
http://www.ed.gov/offices/OSERS/IDEA/index.html
OFFICE OF SPECIAL EDUCATION AND REHABILITATIVE SERVICES
http://www.ed.gov/offices/OSERS
OFFICE OF SPECIAL EDUCATION PROGRAMS
http://www.ed.gov/offices/OSERS/OSEP/index.html
THE SPECIAL ED ADVOCATE
http://www.wrightslaw.com
A free online newsletter about special education legal issues, cases tactics and strategy, effective educational methods, and Internet links.
DEPARTMENT OF HEALTH AND HUMAN SERVICES
http://www.os.dhhs.gov
CHILDREN'S HEALTH INSURANCE PROGRAM
State-specific information on eligibility and enrollment.
http://www.insurekidsnow.gov
Other Internet sites to visit:
http://www.altavista.digital.com
A search service that references over 1000 entries on Fragile X. If you have a lot of time and curiosity, try this!
FRAGILEX-L@LISTSERV.CC.EMORY.EDU
(see FRAXA's home page for information, or subscribe by sending e-mail to the preceding address and in text of message simply type SUBSCRIBE FRAGILEX-L Your Name) FANTASTIC site where parents from all over the world can talk about different issues on Fragile X! Like an on-line support group.
VIRTUAL ASSISTIVE TECHNOLOGY CENTER
http://www.at-center.com
Specializes in freeware/shareware software for people with disabilities.
ALLIANCE FOR TECHNOLOGY ACCESS
http://www.ataccess.org
The ATA is a network of community-based resource centers, developers and vendors dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies. |
