Fragile X Alliance of Ohio

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Local Agencies
Hospitals
AKRON 

AKRON CHILDREN'S HOSPITAL
  FRAGILE X PROGRAM
1 Perkins Square
Akron, Ohio 44308
Phone: 330-543-8050

OTHER LOCATIONS
Aultman Hospital Genetics Clinic
Medina County Health Department
Trumbull Memorial Hospital

 

Director of Fragile X Program
Dr. Carol Delahunty

Cindy King, Coordinator
Appointments: 330-543-6015

Chairman of Genetics
Dr. Haynes Robinson
Phone: 330-543-8792

CINCINNATI
Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, Ohio 45229-3039
Phone: 513-636-4200
 

Dr. Gregory Grabowski
DIRECTOR


CLEVELAND
THE CLEVELAND CLINIC FOUNDATION
Medical Genetics/T 10
9500 Euclid Ave.
Cleveland, Ohio 44195
Phone: 216-444-6833


DR. ROCIO MORAN
Clinical Geneticist

Appointments: 216-445-5686


METROHEALTH MEDICAL CENTER
The Genetics Center
Department of Pediatrics
2500 MetroHealth Drive
Cleveland, Ohio 44109-1998
Phone: 216-778-4323

OTHER LOCATIONS
Lorain City Health Department
Medina County Health Department



 

DIRECTOR
DR. CAROL A. CROWE


UNIVERSITY HOSPITALS OF CLEVELAND
The Center for Human Genetics
11100 Euclid Ave. Lakeside 1500
Cleveland, Ohio 44106-9959
Phone: 216-844-3936

OTHER LOCATIONS
University Health Center at Landerbrook
North Olmsted Pediatrics Specialty Center



DIRECTOR
DR. GEORGIA WIESNER


COLUMBUS
Nationwide Children's Hospital
700 Children's Drive
Columbus, Ohio 43205
Phone: 614-722-3535

Dr. Dennis Bartholomew
DIRECTOR


DAYTON
Children's Medical Center
1 Children's Plaza
Dayton, Ohio 45404-1815
Phone: 937-641-3800

Dr. Marvin Miller
DIRECTOR


TOLEDO/YOUNGSTOWN
NW Ohio Regional Genetics Center
2222 Cherry St., Suite 2300
Toledo, Ohio 43608
Phone: 419-251-8012

Dr. Joe Hoo
DIRECTOR


TOD CHILDREN'S HOSPITAL
Genetics/Department of Pediatrics
500 Gypsy Lane
Youngstown, Ohio 44501-0240
Phone: 330-884-3106

CHAIRMAN OF GENETICS
DR. KURT WEGNER


State, County and Other Related Agencies

State Resources
• Ohio Legal Rights Service - 800-282-9181
• Ohio Protection & Advocacy - 800-OPA-1220

• Learning Disabilities Association of Ohio - 800-543-7LDA
• Division of Special Education Parent Mentor Project - 614-466-2650

Healthy Start - Ohio's Health Insurance Option for Children
Mel Borkan
Bureau of Conusmer & Program Support
Ohio Department of Human Services
1-800-324-8680
www.state.oh.us/odhs/medicaid


The Achievement Centers for Children
4255 Northfield Rd.
Highland Hills, OH 44128

Phone: 216-292-9700

www.achievementcenters.org


EXECUTIVE DIRECTOR
Patricia Nobili

The ARC of Greater Cleveland (Center for Mental Retardation)
1331 Euclid Avenue
Cleveland, OH 44115
Phone: 216-622-0755
www.cmr-cleveland.org
  • Provides information and resources to individuals and families to help them navigate the confusing public and private service systems
  • Investigates and helps resolve issues that individuals or families might have with service providers
  • Teaches individuals with intellectual disabilities how to protect their basic rights and receive equal access to services
  • Serves as a watchdog for any agency or organization that provides services for individuals with intellectual disabilities


EXECUTIVE DIRECTOR
Cynthia Norwood

KidsLink
2132 Case Parkway North
Twinsburg, OH 44087
Phone: 330-963-8600
www.kidslinkohio.com
KidsLink continues to add providers and services that allow us to address the total needs of children and young adults with neurological and psychological diagnoses.

 


OCALI (Ohio Center for Autism and Low Incidence)

Ohio Center for Autism and Low Incidence (OCALI) serves families, educators, and professionals working with students with autism and low-incidence disabilities, including autism spectrum disorders, multiple disabilities, orthopedic impairments, other health impairments, and traumatic brain injuries.


470 Glenmont Ave
Columbus, OH 43214
(866) 886-2254

www.ocali.org

Peak Potential Therapy
8848 Commons Blvd, Suite 101
Twinsburg, OH 44087
Holly Reimann, MA, CCC-SLP
Phone:330-405-8776   or 888-497-8885
http://peakpotentialtherapy.com/speechtherapy.html

Therapy Treatments & Resources for Families with Children
Affected by Autism & Related Disabilities in Cleveland / Akron Ohio

 


National Information Center for Children and Youth with Disabilities
P.O. Box 1492
Washington, DC 20013

Phone: 1-800-695-0285
http://www.nichcy.org/


County Board of Mental Retardation

• Cuyahoga 216-241-8230
www.CuyahogaBDD.org

• Geauga 440-729-9406

• Lake 440-350-5100
• Lorain 440-329-3734
• Medina 330-725-7751
• Portage 330-297-6209
• Summit 330-630-4600


Cuyahoga County Mental Health Board
www.cccmhb.org

Tapestry
Program for children with mental health issues
www.cuyahogatapestry.org


The Family Information Network

Phone: 440-460-1571
website: www.familychild.org

Description: The Family Information Network of Ohio (FINofOhio) is a statewide parent network designed to keep family perspectives at the forefront of Ohio’s Help Me Grow (HMG) system by offering support through information and education to families of young children and the professionals who serve them.

Help Me Grow of Cuyahoga County
Phone #: 216-736-4300
Web Site: www.helpmegrow.org
Help Me Grow provides health, developmental and parenting services and resources for families and children prenatal to age three.
Under the auspices of the Cuyahoga Early Intervention Collaborative (CCEIC).  CCEIC is the organization mandated by the Ohio Department of Health to oversee the implementation of federal early intervention legislation and state early intervention initiative.  We are a planning body of families, providers and others in the community committed to a comprehensive, family centered Early Intervention System for infants and toddlers who have or are at risk for developmental disabilities or delays.  All these services are free, confidential and voluntary.

Ohio's Family Support Collaborative
Kim McConnell
Ohio Family Support Collaborative (FSC)
The FSC is funded by a grant from the Ohio Developmental Disabilities Council and is administered by the Ohio Legal Rights Service. Its purpose is to bring Ohio families who have children with disabilities together to create an organized advocacy group and to provide families with a complete source of information, mainly through the use of the Web site.

Fieldstone Farm (Therapeutic Riding Center)
16497 Snyder Road, Chagrin Falls, OH 44023; 440-708-0013
www.fieldstonefarmtrc.com
Therapeutic horseback riding programs for students who have physical and cognitive disabilities. Students of all ages learn riding skills, horse care and barn management in an education and therapy-based, challenging, safety-oriented and enjoyable atmosphere!

Special Olympics Ohio

Tel: 614-239-0750
Fax: 614-239-1873
Email:
rwrsooh@aol.com
Website: http://www.ohiospoly.org

Special Olympics, Inc.

1325 G Street, N.W., Suite 500

Washington, DC 20005

1-800-700-8585
Website: www.specialolympics.org


Education

SERRC
Central Ohio SERRC
(614) 262-4545
Delaware, Fairfield, Franklin
Licking, Madison, Pickaway,
Union

Cuyahoga SERRC
(216) 524-2770
5811 Canal Road, Valley View
Cuyahoga

www.csesc.org

East Central Ohio SERRC
(330) 343-3355
Belmont, Carroll, Coshocton,
Guernsey, Harrison, Holmes,
Jefferson, Muskingum, Noble,
Tuscarawas

East Shore SERRC
(440)256-8483
Geauga, Lake
http://www.eastshore.esu.k12.oh.us

Hopewell SERRC
(937)393-1904
Adams, Brown, Clinton,
Fayette, Highland

Lincoln Way SERRC
(330) 875-2423
Columbiana, Stark, Wayne

Miami Valley SERRC
(937)236-9965
Clark, Darke, Greene, Miami
Montgomery, Preble

Mid-Eastern Ohio SERRC
(330) 929-6634
Medina, Portage, Summit


 


North East Ohio SERRC
(330) 394-0310
Ashtabula, Mahoning, Trumbull

Northern Ohio SERRC
(440) 967-8355
Erie, Huron, Lorain

Northwest Ohio SERRC
(419)833-6771
Defiance, Fulton, Hancock, Henry, Lucas, Ottawa,
Paulding, Putnam, Sandusky, Seneca, Van Wert,
Williams, Wood

Pilasco-Ross SERRC
(740)354-4526
Lawrence, Pike, Ross, Scioto

Southeastern Ohio SERRC
(740) 594-4235
Athens, Gallia, Hocking, Jackson, Meigs, Monroe,
Morgan, Perry, Vinton, Washington

Southwestern Ohio SERRC
(513)563-0045
Butler, Clermont Hamilton, Warren

West Central Ohio SERRC
(419)738-9224
Allen, Auglaize, Champaign,
Hardin, Logan, Mercer, Shelby

North Central Ohio SERRC
(419) 747-4808
Ashland, Crawford, Knox, Marion,
Morrow, Richland, Wyandot


OCECD - Ohio Coalition for the Education of Children with Disabilities
165 West Center Street, Suite 302
Marion, OH 43302
(800) 374-2806
(740) 382-5452
(740) 383-6421 FAX
Hours M-F 8-5
email:
ocecd@gte.net

website: www.ocecd.org

As a federally funded Parent Training and Information Center, the OCECD is responsible for providing information, training, and assistance to parents of children with disabilities throughout Ohio. To make this support more accessible to parents, OCECD has established offices across the state. All offices are staffed by parents of children with disabilities.


Positive Education Program - Connections (PEP) 
3134 Euclid Avenue
Cleveland, OH 44115
(216) 361-9100 
(216) 361-7774 FAX

website: www.pepcleve.org

Norah Joseph, Family Support Liaison


Wrightslaw
www.wrightslaw.com

Parents, advocates, educators and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities.

Website for Students with Disabilities Interested in College
http://www.going-to-college.org/
This new website contains information about living college life with a disability. It is designed for high school students. Site provides video clips, activities and resources that can help them get a head start in planning for college. Video interviews with college students who have been successful. Activities to help students explore more about themselves, learn what to expect from college and more...


Adult Services/Housing/Job Assistance

Help Foundation Inc.
(216) 432-4810
In addition to managing group homes, Help also holds summer daycare programs, offers counseling, speech and music therapy and provides help in learning life skills such as personal hygiene, getting and keeping employment and using public transportation.

Koinonia Homes, Inc.
4560 E. 71st Street
Cuyahoga Hts., OH 44105
(216) 588-8777
As a private, non-profit corporation, Koinonia operates homes in residential neighborhoods in the Cleveland area, each home housing eight individuals with mental retardation or developmental disabilities. The homes are owned or rented by Koinonia and resemble any other home in the neighborhood.


LEAP (Linking Employment, Abilities and Potential)
1468 W. 25th St. Cleveland, OH 44113; 216-696-2716; www.leapinfo.org

LEAP serves persons with disabilities in eight northeast Ohio counties and promotes self-determination, peer support, self-help and self-advocacy, system advocacy, and equal access to society which leads to empowerment, independence, inclusion, and maximized leadership. 80% of the board members and 50% of the 42 staff are persons with disabilities. Recreational and job assistance programs are available.

North Coast Community Homes
5410 Transportation Blvd., Suite 3
Cleveland, OH 44125-5300
(216) 662-1880
North Coast Community Homes, Inc. (NCCH) is a nonprofit organization which develops and manages housing for individuals with disabilities. Since its inception in 1984, NCCH has developed 127 properties with 155 rental units in 54 municipalities in Cuyahoga, Summit, Lake and Stark counties, and serves over 660 individuals with mental retardation, severe mental illness and other disabilities.

Y.E.S. Your Employment Services
Tricia Schaum - Executive Director
(216) 249-2323
A small staff of seven supervises and checks the completed jobs. All work is guaranteed. Y.E.S. assumes responsibility for payroll and Worker's Compensation. Together, they make up a working community - or "work-plus place" as Executive Director Tricia Schaum likes to call it.

Parents' Volunteer Association (PVA)
17608 Euclid Ave.
Cleveland, OH 44112

(216) 481-1907
PVA's mission includes assisting individuals in their family homes and developing homes in established communities where there are greater opportunities for individuals with disabilities to grow and to become more independent and productive members of society.

Vocational Guidance Services
2239 East 55th Street
Cleveland, OH 44103-4451

(216) 431-7800 Ext. 227  •  (216) 431-5123 Fax
Michele Keyes - Public Relations Director
E-mail:
michelekeyes@vgsjob.org
Preparing people with special needs for fulfilling jobs.

Cuyahoga East Vocational Education Consortium (CEVEC)
211 Alpha Park Drive
Highland Heights, OH 44143
440-995-7460
http://www.mayfieldschools.org/home.aspx?menu_id=80&parent_id=80
Cheryl Schwartz - Principal
Since 1980, the Cuyahoga East Vocational Education Consortium (CEVEC) has provided outstanding instruction in the area of vocational/technical/work skills to high school age youth with disabilities from the Eastern Cuyahoga County area.
United Disability Services
701 South Main St.
Akron, OH 44311
330-762-9755  (Hours M-F 8-4:30)
www.udsakron.org/

UDS successfully serves individuals of all ages with all types of disabilities – from the mildest to the most severe. Whatever the need, we are committed to offering high-quality options to help fulfill social, vocational, community living, low vision and transportation needs. A Toy Center lending option and Low Vision center are available.