A Support Group for Parents Whose Children Have
Fragile X Syndrome
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| Exciting News!
Drug Trials are Underway!
We are doing a research study to learn more about an investigational drug to treat symptoms of Fragile X Syndrome.
There are 2 age groups for the study - 5-11 years and 12-25 years of age. Click on the flyers below for more information or you can call our clinic coordinator, Cindy King at 330-543-6015
*Click here for the 5-11 Age Group Flyer
*Click here for the 12-25 Age Group Flyer
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Join Our Yahoo Group!
To receive postings on upcoming events or to post news yourself, you need to be invited by our moderator, Kristi.
You can contact her directly at atwood326@yahoo.com
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| Click on this logo for the link! |
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Visit Our
Fragile X Family Clinic at
Akron Children's Hospital!
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| CLICK HERE FOR THE NEW BROCHURE!!! |
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Dr. Carol Delahunty is the Clinical Director and an experienced Developmental Pediatrician with years of experience treating patients with Fragile X.
She will see both children and adults affected by Fragile X Syndrome at Akron Children's Hospital.
The Fragile X Program is in the NeuroDevelopmental Center in the Considine Building at the hospital.
ADULT OPTION: New patients over age 18 can see Dr. Delahunty on a consultation basis after a referral from their primary care physician or psychiatrist.
To make an appointment, call Cindy King
(330) 543-6015 or 1-800-262-0333, x36015
Read more at the Akron Children's Website!
Click here to view the Fragile X materials available for families at the Akron Children's Hospital Resource Library!
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| Our Family Notebook |
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Print Out
Our Helpful
Parent
Notebook!
(click image to print)
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