The Fragile X Alliance of Ohio was started in 1996 by a group of parents in the Cleveland, Ohio metropolitan area who have children affected by Fragile X Syndrome. Present membership is over 90 families.
The Goals of the group are to:
1. Provide mutual support and information to Fragile X families in Ohio.
2. Promote the education and awareness of Fragile X Syndrome to physicians, therapists, educators and the general public.
3. Support and promote research on Fragile X Syndrome.
We are a local chapter of the FRAXA Research Foundation and a resource group for the National Fragile X Foundation. All families are welcome to join our group - we all share the common bond of having Fragile X syndrome in our families - affecting our lives and those of our children.
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Fragile X Alliance of Ohio Board of Trustees
Leslie A. Bagdasarian, President
Kristine Atwood
Ara A. Bagdasarian
Julianne Boise
Niki Lynch
Scott Schneider
Amy J. Statt
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